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Rare Disease Day "Light UP for Rare" - LIGHT UP ORANGE/BLUE/PURPLE

  • BOMA Philadelphia 1515 Market Street Philadelphia, PA, 19102 United States (map)

CureGrin (Gri disorders - GRIA, GRID, GRIK, GRIN) are just a small part of diseases classified as a Rare Disease. Rare Diseases, are a small fraction of diseases however, impacting over millions. Often called the Orphan Diseases because so many are just not aware of them. These are diseases that diagnosis are difficult and lengthy, very few treatments exist, and continued information hard to obtain. " Light Up for Rare" would most definitely bring strong (and much-needed) awareness for the rare disease community.

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February 19

MMN Awareness Month - LIGHT UP ORANGE

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March 1

Kidney Cancer Awareness Month - LIGHT UP ORANGE